Gillian Marchenko

March Home Staging, Jooniper Design, Author & Speaker

Learning the language of my non-verbal child …

The misconstrued assumption that she has no language

I’m a writer.

A reader.

A word person.

And my five-year-old daughter, fourth in the line of sisters, has no words.

At times her inability to speak brings tears to my eyes. Somehow, without my full approval, part of me has decided that because she cannot yet speak, she has no language.

Evangeline came to our family from an orphanage in Ukraine when she was two years old. I suspected she would not be speaking. It usually takes kids with Down syndrome a bit longer to gain the strength and coordination needed to produce words and her start in life wasn’t great. No therapy, not a whole lot of social interaction.

I was right. She wasn’t speaking.

Two-and-a-half years later she still is not speaking (although she said doggie last week out of the blue, clear as day, hit me right between the eyes, can I think of any more cliches to get my point across?). Once in a while she makes a sound that is close to “Hi” or “Papa”, and we take it. We dance, give high fives, smile, laugh.

This is it! She’s going to start speaking.

But she doesn’t. We all talk to her, sing to her, sign at her but she doesn’t speak.

Realizing her language

I want to hear her voice. I want words.

But I don’t get them.

I pray. “God, help me. I don’t know how to do this.”

And he answers with one word.

Language.

And I am reminded of my past. Our family lived in Kiev, Ukraine (the city my husband was born and raised) as missionaries for four years. Our plane landed on the hardened, snowy Ukrainian soil (January’s not a great time to move, um, anywhere) and the only words I could put forth confidently in Russian were, “Hello, my name is Gillian.”

So I studied.

I studied Russian every day for over three years. I ate, slept, breathed Russian, and still it took a long time to speak. And so I got by in group settings on body language. I laughed when everyone else laughed. I met eyes with my husband to see what he was doing and copied him. I watched. I observed. I learned the cultural language in Kiev way before I learned Russian.

In those first few months it meant a lot when someone in Ukraine spoke English with me. Even if he or she didn’t know my language well, I appreciated the effort.

Learn her language, Gillian, even if it is not the language you prefer. She has a voice. Make no mistake, she is speaking to you.

Learning her language

I begin to pay attention to my daughter. I watch. I observe.

Indeed, she speaks. Even without words or signs, Evie communicates.

*A shoe thrown at you – please, take me outside.

*A small hand leading you to the bathroom – I want to take a bath.

*Arms reaching up – hold me.

*Finding her purple coat and bringing it to you – school.

*Going to her seat at the kitchen table and getting in – I want to eat.

Days pass and Evangeline gets more comfortable as a member of our family. She speaks to us in the way she knows how. As we’ve taken the time to learn her language, she is freed up to speak more. She has two signs now: music and more.

We still talk to Evie all the time. We teach her signs with hand-over-hand prompting.  I praise God for the communication my daughter and I have, and still, I petition for actual words. My dream of one day hearing a whole, clear sentence out of my daughter has not dissipated.

But I am thankful God slowed me down enough to realize Evangeline has a language, even though it may not be one I prefer. Having kids really isn’t about our preferences as parents though, is it?

Every person has a voice.

It was a lesson I desperately needed to learn.

My five-year-old daughter who is currently non-verbal has a language.

And it is up to her family to learn it.

Do you have a child who is non-verbal? What’s his/her language?

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21 comments found

  1. Oh my goodness Gillian…. I love this one! I still long to hear our girl speak in full sentences instead of short 3-4 word phrases. I know the sound of her voice but I still spend most days wondering what thoughts are inside her longing to be shared. I want to sit side by side and have a real conversation about her day instead of asking leading questions in hopes of getting the 2-3 word answer that I know is correct because the note from school tells me more about her day than she does. And while life is good and we manage to communicate well it is still an amazing challenge to learn her language for the things we don’t understand. Thank you.

  2. Gillian, 20 years have gone by and I have never had a conversation with my Jillian that could be translated into words. I have dreams in which she is talking and now instead of sadness when I wake and realize it was just a dream, I am overjoyed because God has given me a glimpse of what awaits both of us in Heaven! Until then, I watch and I listen and Jillian communicates through flashing lights, ‘hooting’ and ‘uffing’ and clapping her hands (for more and yes). Before she had seizures she had a few sporadic words and an “I love you!” once or twice and when she is upset a clear ‘Mum mum’ but that’s it. But it’s all okay because we will have eternity to talk in Heaven!! And until then I have a best friend who keeps all my secrets!!! It’ll get easier for you I promise.

  3. Jake who is 5 years old and has Down Syndrome is non verbal and will take us by the hand to the TV to turn on Backyardigans or one of his shows. When he is ready to leave some place he will bring his coat, my coat or my purse to me. When he wants to eat he sits at the kitchen counter and don’t leave he kitchen and leave him alone because he will start to cscream, he wants company. When he wants something to drink he will bring the cup part of the sippy cup to us and push it against us if we aren’t paying attention. For a while he seemed to say a few words like, all done,eat and he signed a few things but he would do them once or up to five times and never again. We dance and sing all the time with him but still no words.

  4. My nearly 8 year old daughter Ella with Ds from Colombia still has very few words. You may have noticed yesterday on facebook, in fact, that I posted one of her words–cheers! We have definitely realized over the years that she communicates really well without words. Her brothers and sisters speak Ellish better than I did at first and were often (and still) my interpreters. One day I managed to get worked up about the fact that she had never told me she loved me…until she held up her hands to me, plastered her little arms and legs around me and buried her face in my neck. I’ll take it.

  5. ah, this is a conundrum! we used baby sign language – and it helped a lot! we have a friend who is older who still does not speak (sorry…but true) but let me tell you… A has a GREAT understanding of words…just doesn’t express them the same as you and I. we talk about his favorite sports teams…what he is going to do…and he is Awesome! ah, and another non-verbal friend w/o DS has a phone with internet access…and he will let you know exactly where he is going…and what the score for his favorite team is…and a LOT more! both of these young gentlemen are awesome…and have no verbal speech…but LOTS of language! ♥ ya!

  6. Gillian, thank you for a beautiful, insightful post – every person has a voice, amen! Learning to connect with those whose expressions are different from mine is a powerful practice. My younger brother Willie has autism, and, while he may never say, “I look up to you,” or “I’m glad you’re my sister,” he communicates those things in his own way, and I treasure them when he does! (He once cast me as Snow White in a hypothetical version of Snow White and the Seven Dwarves. Everyone else in the family was a dwarf, but I got to be a princess. I was blown away.)

  7. there are really good lessons in here for all of us Gillian- not just for those with non-verbal children. My child is VERY verbal but he still speaks a different language than me many days with his Autism. It is good to slow down and really hear him, hear what he is really saying rather than just the words he is screaming at me.

    so well said.

    xox

    1. You’re right. I didn’t think about that. But each child is different, and as parents we need to learn the language of each of our kids. Great reminder, Tara.

  8. I am a special education teacher. Some of my students have huge expressive vocabularies, some use very few words, one is completely nonverbal, but they all communicate. I have the best job in America. Sometimes a child gets really frustrated when I cannot understand what he or she is trying to tell me, but those breakthroughs when I finally get it are the best and most joyous moments in the world! My job is to teach them– and I do!— but they teach me, too, every day! I am also an artist and the wonderful children in my class help me to always think and see beyond the obvious. When a child starts to get impatient with me when I am slow to understand, I try to “listen” harder and make sure all my body and facial language is showing how hard I am trying and that I am giving my full attention.

  9. Our Jadon, also from Ukraine (Kirovograd), is 3.5 years old and is non-verbal–for the most part. Jadon does say Da-Da, Nah-Nah (momma) and No…plain as day NO 🙂 Otherwise, we have just two signs, “more” and “eat”. Jadon’s language is love..he is a lover. He gives kisses, smiles, and will seek affection these days. Will his speech grow? Who knows. I pray it does; but if it doesn’t, that’s ok. Jadon is a perfect, integral part of our family and that is good enough. Thanks for sharing, Gillian.

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