Some of my favorite books about Down syndrome In honor of Down syndrome awareness month, I thought I’d share some of my favorite books. Click on any of the pictures to go to Amazon to purchase your own copy of these worthwhile reads. “A Good and Perfect Gift” by Amy Julia Becker. This memoir just came out last year. Amy Julia is a gifted writer. This book is smart and from the heart. A
Pulling to stand (Here’s an old post about Polly and I both pulling to stand in the midst of Down syndrome) The year after Polly was born I cried every day. My daughter’s diagnosis was hard to take. It grieved me. People urged me to give it time. ”Let the baby change you,” they’d say. “Soon enough, you’ll only see Polina, not the Down syndrome.” One dad, whose adult daughter has Down syndrome, wrote, “I know the
This is a story about Menard’s, an open can of paint, and a cute girl with Down syndrome. A few months back, I made a quick trip to the store for some more paint to finish a room in our basement. I took the empty paint can, because, well, I’m NOT handy and I knew I’d forget what to buy at the store, and it actually seemed like more work to find a pen and
My daughter’s 3rd anniversary of a stroke & diagnosis of Moyamoya Not that you want an anniversary like that in your family. I’m weepy this morning. Three years ago this week, our third daughter Polly, who was born with Down syndrome, had a catastrophic stroke that resulted in temporary paralysis on the left side of her body and the diagnosis of Moyamoya disease, a very rare condition that thins the arteries in your brain to