Eating out of my hand … actually off the floor, breakthroughs with Down syndrome (This is a recycled post from five years ago. I’ve been disappointed with Evangeline’s lack of development lately. Reading this about Polly spurs me on. My kids are gifts.) One of Polly’s Physical Therapists left a half hour ago. Today was her six month evaluation. Instead of the usual scream fest and protests to bouncing on a ball and standing at the couch, we just
The color system for motherhood and depression Click here to download my free pdf graphic of the color system as my gift to you. My husband Sergei and I have adapted our seven year old daughter Polly’s behavior system at school here at home. Only at home, it is for my depression and how it affects our family. Based on colors, it goes like this: Blue: great day Green: okay Yellow: struggling but fighting Red:
What they lose … thoughts about siblings of kids with Down syndrome “Mom, we just realized today that our school play is during the same week as family camp. We had to pull out of the play. We gave our lines to other actors,” my eleven-year-old daughter Zoya looked at me, alarmed, tears forming in the corner of her eyes. About a month ago, we were offered an amazing scholarship to attend a special needs
Why a wave matters, thoughts on parenting a nonverbal child “I had a dream last night that Evangeline started talking,” Sergei tells me as we tag team through our early morning duties to get our four children off to school. I smile at the thought … we both seem to dream about Evie speaking to us at different times … and busy myself making peanut butter sandwiches for the girls’ lunches. About our girl Evangeline